Julia has been active with the PKD Foundation as a volunteer heading the Atlanta Chapter, Atlanta Walk for PKD, is on the Board of Trustees and ARPKD Chapter Coordinator. She serves on the parent advisory committee as chair for Children’s Healthcare of Atlanta.

Julia fields calls from families newly diagnosed with ARPKD and unknown cystic kidney disease calling the national office of the PKD Foundation. She spoken at the PKD Foundation’s National Convention more than once and has been on the committee to plan the conventions.

She takes calls and responds to emails everyday from families looking for support, information and connection.