This morning I’ve opened my IF eating window with GS thin mint cookies and it was an excellent choice for a breakfast appetizer. I’m waiting to be added as a caregiver to the food list to be able to order food at Emory.
Late Wednesday we learned Q’s kidney function went down to 8%. We had already set an appointment for this coming Tuesday with a new nephrologist at Kaiser so we could begin the process to start her on dialysis. Her creatinine (and kidney function up) is coming down with treatment here, thankfully.
We were shocked to learn that she also has COVID. She was (is) completely asymptomatic. She is only suffering from kidney and liver failure, and nothing related to COVID (there’s a pretty good chance the COVID wreaked havoc on her system and threw her kidney function down while fighting it off I guess). Q waited in the ER until yesterday afternoon when a bed on the COVID floor opened up.
I had to leave Q yesterday because caregivers aren’t allowed to stay with COVID patients (I and all in my family tested negative). Because of Qs complex medical history and current situation, age, the fact she moved from CHOA to here for care without a true transition plan, they made a very big exception we are grateful for and are allowing me to stay, so I came back late last night. I cannot leave the room for anything and must wear full PPE gear at all times.
Thanks to our friends who helped us navigate that request from the hospital yesterday and thanks to the hospital administration for weighing Qs health and well-being as a priority, among all of the priorities of keeping people safe right now. We are so grateful.
I need to blog more to catch people up as it involves info on Qs liver/kidney evaluation and Gs progress towards (hopefully ruling out liver need right now) a living donor kidney transplant. We are hoping to avoid dialysis for him this time. Being a parent to young adult people with complex medical issues is….. something. Not sure if there is a word on the planet for it yet, but it’s something.
